Childhood Cancer is an orphan disease. Most drug companies cannot make a profit from manufacturing child cancer treatments, so they choose not to. Funding for clinical trials is through people and organizations like us. There is one other major source of funding for cancer research - The National Cancer Institute. This is a government funded organization that has the power to give grants to clinical trials.
However, the NCI indicates that childhood cancer is “relatively rare” and invests less than 4% of its annual budget in pediatric cancer research. Statistically speaking the fact that only 13,400 children are diagnosed may deem that cancer is rare among children but that does not mean that we should ignore the tens of thousands of children in treatment or the thousands that will be diagnosed this year because they are statistically rare. Childhood cancer is the leading cause of death in U.S. children. Children diagnosed with cancer deserve cures, and cures will only come with an investment in research and treatments.
We are asking that you help us by writing a letter to Congress to ask they shift more funds to kids cancer research. Three letters, actually would be best - one to your congressperson and two to your Senators. The more letters they get, the higher the chances that they will shift their funding.
It is easy!
1. Use this sample letter to congress here
2. Get name and address info or email info by going to The House website at www.house.gov or the Senate website at www.senate.gov
3. Send it and Make it happen!
8. Start a FIT Challenge!
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Founder Teagan meeting with Senator Boxer on Capitol Hill asking for Congress to provide more funds to pediatric cancer research.
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